The hardest days....

Hubby and I hugged little Caylah Bear so hard today. She is not getting better from this bought of pneumonia. She is weaker than she has ever been. She has not interacted with us this whole week- due to the paralytics she is being given to help keep her saturation levels up. I am so scared.

We had another meeting today with her team of doctors..the tone was different. We brought Macaylah to one of the best children's hospitals in the country in hopes of finding some answer, or a remedy to her lung issues. When I heard from one of their top pediatric lung practitioners that there is nothing more that they can do for our little girl...I died inside.

The meeting was greuling...question after question about what we want for little Caylah....unsolicited opinions on what we SHOULD do or what we SHOULDN'T. Being told that there are no right or wrong answers to any of their questions..but feeling like every time I feel like I'm making the right decision, they make me feel like it's wrong.

We are going to spend the day again with our little Caylah bear tomorrow..the docs are going to wake her up from her paralytic..all I wish for is another precious smile and for her to know that her mom and dad are so proud of her.

God please let our cable get here soon.....

Our days are packed....visiting our Caylah bear, having meetings with doctors, running errands and going to the gym..(which I'm regretting right now since I can barely walk up a flight of stairs) But it's the evenings..oh I'd say around 9pm- when all I want to do is watch some seedy reality show that has no educational value just crappy sink yourself into someone else's problems tv show....but due to the lack of cable at this moment, I get to hear the "nails on the chalkboard" sound of the startup of the dreaded XBOX! Why do boys/men have such a crazy addiction with this darn thing? Why can't they have such a love for folding laundry, doing the dishes or making beds? A question that Sarah, Elizabeth, and Lauren may also have...right ladies :) I think reruns of Sex in the City are in order during Monday night football :)

Getting settled..

We are finally settling into our new place. Thank goodness for GPS! Hubby and I trying to find our way around without one would be disastrous!! I know, I lived here basically my whole life and I still get lost... I have to admit I've even done some last minute turn arounds (while using the GPS) because I wasn't paying attention to it :) Looks like I'm asking for brain games for Christmas..at this rate I'll be senile by the time I'm 35!

We are still waiting for our household goods to arrive from Hawaii..it has been quite the nostalgic adventure.... feels like freshman year in college..why did I choose Freshman year? Because I think we've both gained 15lbs from what else...eating like a college student!! (as I sit here eating my lucky charms from a plastic drinking cup :)
I know, there is no excuse to eating horrible just because you don't have all your household goods..but is sure is a wonderful excuse! I think I see a package of Devil Dogs coming my way!

Well I'm about to head out to see my little Caylah bear. I'm hoping that we have a good day today. She has still been quite sick with pneumonia for about a week now. She has had to go back on some of her drip medications to help keep her calm. She is such a trooper! I think I'm going to get her another stuffed animal today.. she just about has every animal know to man in her bed....I TOLD her I was going to buy her Noah's Ark