Conspiracy Theory...

So this is for all you ladies out there...Have you ever been so psyched to have two mirrors in your bathroom?..One of them angled so perfectly that you can see the back of your hair while styling it!! I was thrilled when I realized I didn't have to hold up another mirror while trying to juggle a brush and blow dryer....until this morning. In that once beloved second mirror of mine, I noticed that I now have MOM toosh! Yup, the kind that starts at the waist and stops at your ankles..when the heck did that happen??!!

It's a conspiracy..I'm pretty convinced that Jordache(remember that brand) and Hostess have a plan! Mom Jeans here I come.

Deck the halls...

Man am I gettin' old!

Hubby left for NH this afternoon to do some paperwork for his residency. So I thought how nice it would be if I decorated the tree as a surprise for when he got home. So let's back up a smidge....

I was so excited when we got our tree yesterday. We have always been the type to pretty much go all out on the holidays. You know, the whole Griswold Christmas tree thing..So we trucked merrily home with our 9 ft tree. It just barely fit(with a few adjustments to the top of the tree that was bent backward onto our ceiling) but it is beautious.

So to continue my "I'm getting old" story... so we have no stools..we have no ladders..we have no chairs..well, aside from our couches- but really, what kind of nut would move her couches over to the tree to reach the top?(sadly, I thought about it) so I decided that I would cleverly jump up to the top of the tree to place the first set of lights (not thinking that I would ram into it like an idiot and leave half the pine needles scattered about the floor.) I managed to get the first string of lights adjusted okay..but how the heck was I supposed to get it around the back without getting completely sucked into this monsterous thing?

A wet sock and 30 gazillion pine needles later, I finally managed to get the lights on myself. By this time I was exhausted! So here lay 4 boxes of ornaments.......on the floor. Hence the very FAR away picture of our tree :) Well, so much for surprising hubby with a fully decorated tree... Tis the season.

Beautious...





Found this gorgeous photo of a Plumeria (Hawaii State Flower) Ahhhh..... I miss Hawaii.

Bittersweet...

As Hubby and I were headed out the door last night to see the Nutcracker, I reached into my purse to put my phone on vibrate, and I realized that it had still been on that setting since the night before..and their was a message. It was a message that I would have never expected to get in a million years!!

Macaylah had so many tests done (to see if her lung issues were genetic) before coming to Boston. All of the doctors were not surprised when all of them came back negative. They, as well as us knew that her lung issues were a result of prematurity and multiple infections in the hospital.

I listened to my message..."urgent message. This is Dr. Hudak from Tripler Army Medical Center and I need to discuss some important test results regarding your daughter" Well if that didn't put a whole boat load of "what if's" in my head. Hubby called back right away.

What I understand the most about their conversation was "at least we have an explanation"

There was a test result that was still pending that we were not aware of. It was a genetic mutation test (not positive on the name..we are still waiting for the fax) I will try to explain it best I can. Macaylah tested positive for a gene mutation. She had a normal variant as well, but when that certain gene mutation and that specific normal variant are combined (which is what she has) it can act like Cystic Fibrosis. We were stunned. All along we thought that it was just her prematurity..we were a little puzzled at times to see other 24 weekers do well and eventually go home, when poor little Caylah bear was still struggling. We now have a concrete reason as to why our little girl is so sick.

This is all so Bittersweet for us. Knowing why she has had such a hard time recovering from infection these past 9 mth is such a relief, But knowing that the outcome and treatments are exactly the same is devestating. I am not 100% sure that NOTHING more can be done for her. We are going to present this info to the docs at CHB today, and see if their is anything else we can do for her. But hubby being a doc himself does not think their is any other medicine or treatment that will "cure" her.

Genetics are VERY foreign to me..I will be doing some more research on this specific gene mutation, and I will keep everyone updated as best I can.